Sharing Autistic Family Stories

This conversation took place March 2017. Art from of our travel journals.

Twelve years ago, I Livejournaled a cozy confessional–A Quiet Week in the House.  My life, pregnancy, and motherhood were detailed with adorable nicknames and shoddy graphics.

And then.

My husband left the company he built for ten years.

Our son was diagnosed autistic.

My Dad was diagnosed autistic.

I was diagnosed autistic.

The cutesy nicknames felt disingenuous so I dumped them.

We will not shirk or deny our neurology because autism, Tourette’s, and other differences are not wrong or shameful! “Passing” as a typical person is not the goal of childhood or life in general.

Accepting other people, however, is.

Years have passed since I posted about my son’s journey. How could I be upfront about family neurology while respecting his privacy and agency?

Simple–involve Tyoma more!

At ten years old, Tyoma will co-author stories about him. He will control every article featuring him, including past articles. Nothing about him without him.

Our family stories reaffirm our place in the world.

Writing about experiences as an autistic adult, parent, and daughter amplifies the autistic voices in our family.

I hope our stories bring you joy and thoughtfulness.  This site is about family, after all!

E.T.A.”Tyoma” and “T” are nicknames, but I really am Lori.  Identifiers such as last name, location, schools, and people are obscured. 

9 thoughts on “Sharing Autistic Family Stories

  1. What a beautiful thing to involve T and have him co-author his stories, Lori. Can’t wait to see what’s coming.

    May you bloom,
    Dani

  2. Lori, I hope sometime you feel inspired or enabled to return to posting on this blog because you write so well, about things that are not often talked about and rarely with such insight, sensitivity and love. Whatever’s happening in your family and your life right now I wish you all well, with warmth and happiness for the year ahead.

    1. I appreciate your encouragement and kind words. Yes, a great deal has been going on, Mom is back at a skilled nursing facility and Dad recently had to give up driving. Tyoma has needed much support to maintain at school.

      I had all but given up on writing, but then your comment showed up and it cheered me so much that I am back again. Thank you so much for dropping me some positivity. Your words made a difference for me.

      Warmest wishes,
      Lori

      1. Well, what do you know. I was so happy to hear that you’re back, and happy to know that something I said may have cheered you that I immediately went to your blog and read your post from April last year, (which I loved reading again) and at the end came upon the line by Joyce Meyer that you quote, “Patience is not simply the ability to wait – it’s how we behave while we’re waiting.”
        Which is SO helpful to me right now that it hit me right where it’s needed! We seem to have made a difference for each other. I’m really thrilled that you feel the urge to write again. My very best, warmest wishes.
        Deborah

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